Thank you to everyone who joined us for the Waiting Well event and contributed to the rich and meaningful conversations throughout the day. 💜
What the research tells us
Carers shared powerful insights into the challenges families face when seeking help before a formal diagnosis. The findings highlight:
- The key barriers families encounter during the pre‑diagnostic stage
- The information and support they wish they had been offered much earlier
- Opportunities to strengthen services so no family feels unsupported while they wait
These insights are vital for shaping more responsive, compassionate, and practical support across the dementia pathway.
What happens next
We will be using these findings to inform how Help & Care continues to develop and improve our services for carers and people living with dementia. The experiences shared through this research are already helping to shape new approaches, spark discussions, and guide practical changes.
If the reports influence your work, prompt a new idea, or lead to even small adjustments in practice, we would love to hear from you. Demonstrating real-world impact is essential to ensuring this research drives lasting change.
Please feel free to share the reports widely across your networks with anyone who may benefit.