Other health condition support groups/organisations
BackCare, Monkey Puzzle House, 69 – 71 Windmill Road, Sunbury-on-Thames, TW16 7DT, Tel: 0845 130 2704 – Helpline Monday – Friday 9am – 5pm, 0208 977 5474 – Admin, Email: firstname.lastname@example.org http://www.backcare.org.uk/i-have-back-or-neck-pain/
BackCare is a national charity that helps people manage and prevent back pain by:
- Providing evidence based information
- Promoting best practice in the prevention and management of back pain
- Online shop for books and equipment
- Find a practitioner facility
Bladder and Bowel UK, Burrows House, 10 Priestley Road, Wardley Industrial Estate,
National charity providing information and support for people with bladder and bowel disorders, their carers, families and healthcare professionals. Free delivery off products from the online shop and free RADAR key.
Dorset Lupus Group
Self-help and fundraising group for people with Lupus and associated conditions, their carers, family and friends. Access to a range of information and advice about living with Lupus. For information about the local support group go online to http://www.dorsetlupus.com/links.html or contact one of the representatives for a chat:
Jean Durrant – 01258 860565 – North Dorset
Rosemary Smeeton – 01305 821688 – West Dorset, Purbeck
Dorset Lupus is affiliated to the national charity Lupus UK which has a wealth of information about the condition and holds national events to inform patients and raise awareness and funds for research. Lupus UK can be contacted at:
Lupus UK, St James House, Eastern Road, Romford, RM1 3NH, Tel: 01708 731251
Dorset M.E. Group, Group Administrator, 25 Mariners Way, Chickerell, Weymouth
Dorset, DT3 4LS, Tel: 01305 777670, Email: email@example.com
The group works in partnership with the NHS to provide support, information and advice to people affected by CFS (Chronic Fatigue Syndrome) and ME (Myalgic Encephalopathy). Informal Link Groups offer informal meetings at local venues for members to meet and socialize. There are also organized activities tailored to the needs of people with CFS/ME and medical lectures from speakers with knowledge of CFS/ME. The Dorset NHS CFS/ME service is available to both adults, and children and young people. The service for children and young adults runs from two centres; Dorset County Hospital, and Poole Hospital, there are clinics for adults at Wareham Community Hospital with a consultant and specialist doctor. Referrals are made via your GP for both adults and children.
Epilepsy Action, New Ansty House, Gate Way Drive, Yeadon, Leeds, LS19 7XY
Helpline: 0808 800 5050, https://www.epilepsy.org.uk/
National charity for people affected by epilepsy offering advice, information and support. National helpline is open Monday – Friday 8.30am – 5.30pm. A local support group is available in Bournemouth and Poole and meets at Parkstone Christian Centre, Commercial Road, Poole, BH14 0JW on the second Tuesday of the month between 7pm – 9pm, contact Mark or Kamlesh Adams on 01202 861925 or mobile 07833663051.
FMA UK (Fibromyalgia Assoc UK), Studio 3007, Mile End Mill, 12 Seedhill, Paisley, PA1 1JS http://www.fmauk.org/
Helpline: 0300 999 3333 – Mon – Friday 10am -4pm.
Benefits Helpline: 0300 999 0055 – Mon, Wed, Friday 10am – 12pm.
Information, advice and support from others who understand what it is like to live with Fibromyalgia. Details of local support groups in your area.
UK Fibromyalgia, 7 Ashborne Road, Bournemouth, BH5 2JS, Email: firstname.lastname@example.org, http://ukfibromyalgia.com/index.php - An independent information and advice website for people with Fibromyalgia.
Headway helps brain injury survivors come to terms with their new circumstances, re-integrate into family and community life, and maximise their opportunities and choices. Practical and emotional support is available to families and carers. Locally in Dorset there is a Befriending and Activities Group offering weekly drop-ins at various venues throughout Bournemouth and Poole, weekly football sessions, and an allotment during the summer. Other social and activity groups are also available, for further details contact Adrian Stark on email@example.com .
Huntington’s Disease Association (HDA), Suite 24, Liverpool Science Park IC1
131 Mount Pleasant, Liverpool, L3 5TF, Tel: 0151 331 5444
Caring for someone with Huntington’s can be challenging. It can be helpful to meet up with other people who understand what you are experiencing as you can relate to each other’s experiences and offer emotional and practical support. Huntington’s Disease Association supports volunteers who run support groups for people affected by Huntington’s throughout the country. The groups are informal and are run to meet the needs of the people who attend. For more information contact HDA on 0151 331 5444 or email firstname.lastname@example.org or contact the local Dorset support group via Facebook on
MS Society – Wareham & Purbeck,
MS Society offer support, information and advice to people affected by MS, their families and carers, along with occasional social events and get togethers in the Wareham and Purbeck and surrounding district. Contact John Smith on 01202 622146, email: email@example.com or visit http://www.mspurbeck.co.uk/ .